Archive for the ‘The Marfan Trust’ Category

Marfan Syndrome: Know the symptoms – save a life

“By my calculations, there are 9,000 people in the UK who are unaware that they have Marfan Syndrome – if left undetected up to 1/3 of whom may not live beyond adulthood.” Dr. Anne Childs, Medical Director of The Marfan Trust The official figures show that 1:5,000 people potentially have Marfan Syndrome, yet through the […]

The Marfan Trust

Founded in 1988, the Marfan Trust funds research into the cause and prevention of Marfan syndrome, a dominantly inherited cardiac disorder which also affects eyes and skeleton. What is the purpose of the Marfan Trust? The main objective of the Trust is to support medical research so that more is known about Marfan syndrome and […]